Resilience in mothers of pediatric patients with hematological diseases

Authors

Keywords:

resilience psychological, hematologic diseases, mother

Abstract

Introduction: living a traumatic event such as a child's illness transforms a person's life. Resilience allows man to overcome pain, to continue to live a full life and to prevent illness. Objective: to determine the level of resilience shown by mothers. Method: a quantitative descriptive study was carried out on mothers of children with hematological diseases between January 1 and December 1, 2018. Results: a total of 40 mothers between 18 and 60 years old were studied, the subgroup between 16 and 30 years old predominated. The predominant group was for mothers of patients with sickle-cell anaemia, followed by those who had children with hemophilia and acute leukemias. The analysis of the different parameters of the resilience test showed that the mothers of sickle-cell and hemophiliac patients had medium resilience, while those of patients with acute leukemias had low resilience. Conclusions: everyone has a series of innate coping resources, but it is also necessary to learn and develop new skills.

Downloads

Download data is not yet available.

Author Biographies

Luis Enrique Pérez Ulloa, Dirección Provincial de Salud, Cienfuegos

Especialista de II Grado en Hematología. Jefe de departamento de urgencia, emergencia, trasplante y sangre del MINSAP, Cienfuego.

Dumeivy García Sánchez, Hospital Pediátrico Paquito González Cueto

Especialista de I Grado en Hematología. Máster en Atención Integral al Niño. Investigadora Agregada, Universidad de Ciencias Médicas de Cienfuegos.

Belkis Rodríguez Jorge, Hospital Pediátrico Paquito González Cueto

Especialista de I Grado en Pediatría. Máster en Atención Integral al Niño.

Lázara Ramos Cuellar, Dirección Provincial de Salud, Cienfuegos

Especialista en Laboratorio Clínico

References

1. Stewart DE, Yuen T. A systematic review of resilience in the physically ill. Psychosomatics [Internet]. 2011 May-Jun [citado 26 Ene 2019]:52(3):199-209. Disponible en: https://www.ncbi.nlm.nih.gov/pubmed/21565591

2. Acinas Acinas MP. Situaciones traumáticas y resiliencia en personas con cáncer. Psiq Biol [Internet]. 2014 May-Ago [citado 26 Ene 2019];21(2):65-71. Disponible en: https://www.elsevier.es/es-revista-psiquiatria-biologica-46-articulo-situaciones-traumaticas-resiliencia-personas-con-S1134593414000360. https://doi.org/10.1016/j.psiq.2014.05.003

3. Bravo HA, López JP. Resiliencia familiar: una revisión sobre artículos publicados en español. Revista de Investigación en Psicología [Internet]. 2015 [citado 26 Ene 2019];18(2):152-170. Disponible en: http://revistasinvestigacion.unmsm.edu.pe/index.php/psico/article/view/12089/10807. https://doi.org/10.15381/rinvp.v18i2.12089

4. Vera Poseck B, Carbelo Baquero B, Vecina Jiménez ML. La experiencia traumática desde la psicología positiva: resiliencia y crecimiento postraumático. Papeles del Psicólogo [Internet]. 2006 [citado 26 Ene 2019];27(1):40-49. Disponible en: http://www.papelesdelpsicologo.es/pdf/1283.pdf

5. Registro Nacional de Tumores Infantiles (RETI-SEHOP). Informe 1980-2016. Madrid: X Congreso de la Sociedad Española de Hematología y Oncología Pediátrica; 2016 [citado 26 Ene 2019]. Disponible en: https://www.uv.es/rnti/pdfs/Informe_RETI-SEHOP_1980-2016.pdf

6. Quiceno JM, Vinaccia S. Resiliencia: una perspectiva desde la enfermedad crónica en población adulta. Pensam Psicol [Internet]. 2011 Jul-Dec [citado 26 Ene 2019];9(17):69-82. Disponible en: http://www.scielo.org.co/scielo.php?script=sci_arttext&pid=S1657-89612011000200007&lng=en&nrm=iso

7. Matos Águila D, Mercerón Figuerola Y. Potenciación de la capacidad de resiliencia en familiares de niños con cáncer mediante un programa de intervención psicosocial. MEDISAN [Internet]. 2017 [citado 26 Ene 2019];21(3):379-388. Disponible en: http://medisan.sld.cu/index.php/san/article/view/1195

8. Cabrera A, Ferraz R. Impacto del cáncer en la dinámica familiar. Biomedicina [Internet]. 2011 Mar [citado 4 Nov 2018];6(1):42-48. Disponible: en: http://www.um.edu.uy/docs/biomedicina_marzo2011/impacto_del_cancer_en_la_dinamica_familiar.pdf

9. González-Arratia López Fuentes NI, Valdez Medina JL. Resiliencia: Diferencias por edad en hombres y mujeres mexicanos. Acta de Investigación Psicológica [Internet]. 2013 Abr [citado 4 Nov 2018];3(1):941-956 Disponible en: http://www.redalyc.org/pdf/3589/358933343004.pdf

10. Rosenberg AR, Baker KS, Syrjala KL, Back AL, Wolfe J. Promoting resilience among parents and caregivers of children with cancer. J Paliat Med [Internet]. 2013 Jun [citado 4 Nov 2018];16(6):645-652. Disponible en: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3719479/. https://doi.org/10.1089/jpm.2012.0494

11. De Posada Rodríguez S, Broche Ulloa M. Intervención educativa para fortalecer la resiliencia de madres adolescentes del Policlínico Vertientes. Rev Hum Med [Internet]. 2012 May-Ago [citado 22 Sep 2018];12(2):217-40. Disponible en: http://scielo.sld.cu/scielo.php?script=sci_arttext&pid=S1727-81202012000200006&lng=es

12. Sánchez Masó Y, Jiménez Betancourt E. Conductas resilientes de dos adolescentes con insuficiencia renal crónica en fase terminal. MEDISAN [Internet]. 2014 Feb [citado 22 Sep 2018];18(2):219-25. Disponible en: http://scielo.sld.cu/scielo.php?script=sci_arttext&pid=S1029-30192014000200011&lng=es

13. Rodríguez Méndez O, Gómez García AM, Pérez Hernández A, Vasallo Mantilla C, Martínez Gómez C, Gutiérrez Baró E, et al. Salud mental infanto-juvenil. La Habana: Editorial Ciencias Médicas; 2005.

14. Kaboudi M, Abbasi P, Heidarisharaf P, Dehghan F, Ziapour A. The effect of resilience training on the condition of style of coping and parental stress in mothers of children with leukemia. Int J Pediatr [Internet]. 2018 Mar [citado 22 Sep 2018];6(3):7299-7310. Disponible en: http://ijp.mums.ac.ir/article_10178.html

15. Lindahl Norberg A. Stress and coping in parents of children with cancer [tesis]. Stockholm: Annika Lindahl Norberg; 2004 [citado 20 Ene 2019]. Disponible en: https://openarchive.ki.se/xmlui/bitstream/handle/10616/38601/thesis.pdf?sequence=1&isAllowed=y

16. Willis K, Timmons L, Pruitt M, Schneider HL, Alessandri M, Ekas NV. The relationship between optimism, coping, and depressive symptoms in hispanic mothers and fathers of children with autism spectrum disorder. J Autism Dev Disord [Internet]. 2016 Jul [citado 22 Sep 2018];46(7):2427-2440. Disponible en: https://www.ncbi.nlm.nih.gov/pubmed/27017210. https://doi.org/10.1007/s10803-016-2776-7

17. Bozkurt G, İnal S, Yantiri L, Alparslan Ö. Relationship between coping strategies, religious attitude, and optimism of mothers of children with cancer. Journal of Transcultural Nursing [Internet]. 2019 [citado 20 Ene 2019];30(4): 365–370. Disponible en: https://journals.sagepub.com/doi/10.1177/1043659618818714#articleCitationDownloadContainer

18. Beheshtipour N, Nasirpour P, Yektatalab S, Karimi M, Zare N. The Effect of Educational-Spiritual Intervention on The Burnout of The Parents of School Age Children with Cancer: A Randomized Controlled Clinical Trial. Int J Community Based Nurs Midwifery [Internet]. 2016 Jan [citado 20 Ene 2019];4(1):90–97. Disponible: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4709819/

19. Ilias K, Cornish K, Kumman AS, Sang-Ah M, and Golden KJ. Parenting stress and resilience in parents of children with autism spectrum disorder (ASD) in Southeast Asia: a systematic review. Front Psycol [Internet]. 2018 Apr [citado 15 Ene 2019];9:280. Disponible en: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5900388/

20. Irurzun JI, Yaccarini C. Resiliencia, espiritualidad y propósito de vida. PSOCIAL [Internet]. 2018 [citado 20 Ene 2019];4(2):58-66. Disponible en: https://publicaciones.sociales.uba.ar/index.php/psicologiasocial/article/download/58/2805

21. Zayas A, Gómez R, Guil R, Gil-Olante P, Jiménez E. Relación entre la resiliencia y la satisfacción con la vida en una muestra de mujeres con cáncer de mama. INFAD [Internet]. 2018 [citado 25 Mar 2018];1(2):127-136. Disponible en: http://www.infad.eu/RevistaINFAD/OJS/index.php/IJODAEP/article/view/1233/1089

22. Mayordomo T, Viguer P, Sale A, Satorres E, Meléndez JC. Resilience and Coping as Predictors of Well-Being in Adults. J Psychol [Internet]. 2016 Oct [citado 25 Mar 2018];150(7):809-821.Disponible en: https://www.ncbi.nlm.nih.gov/pubmed/27419659

23. Ye ZJ, Qiu HZ, Li PF, Chen P, Liang MZ, Liu ML, et al. Validation and application of the chinese version of the 10-item Connor-Davidson resilience Scale (CD-RISC-10) among parents of children with cancer diagnosis. Eur J Oncol Nurs [Internet]. 2017 Apr [citado 25 Mar 2018];27:36-44. Disponible en: https://www.ncbi.nlm.nih.gov/pubmed/28279394

24. Moscoso-Escalante SJ, Castañeda-Chang AM. Validez y confiabilidad de la Escala de Resiliencia (SV-RES) para adultos mayores en Lima metropolitana. Búsqueda [Internet]. 2018 Jul-Dic [citado 15 Ene 2019];5(21):165-181. Disponible en: https://revistas.cecar.edu.co/busqueda/article/view/419/424

25. Ojea Jiménez V, Gil F.Importancia del estado emocional y el concepto de resiliencia en procesos de salud y enfermedad [tesis]. Barcelona: Universitat Pompeu Fabra; 2015 [citado 15 Ene 2019]. Disponible en: https://repositori.upf.edu/bitstream/handle/10230/25410/Ojea_Jimenez_2015.pdf?sequence=1&isAllowed=y

26. Rivero López R. El sentido de la vida es una vida con sentido, la resiliencia. España: Editorial Desclée de Brouwer, S. A; 2015 [citado 15 Ene 2019]. Disponible en: https://books.google.com.cu/books?isbn=8433037528

27. García Hernández JA, Juárez Escamilla A. Beneficios de la actitud resiliente en pacientes con padecimientos crónicos. Visión 2020 Latinoamérica Boletín Trimestral [Internet]. 2012 [citado 15 Ene 2019]. Disponible en: https://vision2020la.wordpress.com/2012/12/24/beneficios-de-la-actitud-resiliente-en-pacientes-con-padecimientos-cronicos/

Downloads

Published

2019-07-05

How to Cite

1.
Pérez Ulloa LE, García Sánchez D, Rodríguez Jorge B, Ramos Cuellar L. Resilience in mothers of pediatric patients with hematological diseases. Acta Méd Centro [Internet]. 2019 Jul. 5 [cited 2025 Jul. 1];13(3):378-89. Available from: https://revactamedicacentro.sld.cu/index.php/amc/article/view/1067

Issue

Vol. 13 No. 3 (2019): July-September

Section

Original Articles

License

Authors who have publications with this journal agree to the following terms:

  1. Authors will retain their copyright and assign to the journal the right of first publication of their work, which will simultaneously be subject to a Creative Commons License / Attribution-Noncommercial 4.0 International (CC BY-NC 4.0) that allows third parties to share the work as long as its author and first publication in this journal are indicated.
  2. Authors may adopt other non-exclusive license agreements for distribution of the published version of the work (e.g., depositing it in an institutional repository or publishing it in a monographic volume) as long as the initial publication in this journal is indicated.
  3. Authors are allowed and encouraged to disseminate their work through the Internet (e.g., in institutional telematic archives or on their web page) before and during the submission process, which can produce interesting exchanges and increase citations of the published work. (See The effect of open access).